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Old 01-10-2018, 10:36 AM   #4921
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Even with double vision, I have managed to bake a loaf of Dutch Oven Rye Bread...
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Old 01-10-2018, 10:44 AM   #4922
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Dear Maggie, get well soon! I can't quite imagine you with a pirate patch. How about making a tiny crocheted doily in the shape of a rose?

I never mastered crochet or I'd make it for you...

Please let us know how you are progressing.

Paula

Paula, thawed out at Travelers Rest, Dade City.
Thank you, Paula.

I have been puttering around the house without the patch the last few days...it seemed more needed in the early days ambulating at the hospital, and the first few here, but I am managing pretty well lately without it.

My vision has not improved, but I see my opthalmologist tomorrow and am looking forward to what he has to say.

The bleed has to absorb into the tissue, before I am considered healed, and the neurologist said that will take 3-6 weeks....itís not yet been two, so I need to be patient.

Iíve just ordered dog food and paper products online.

Maggie
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Old 01-10-2018, 12:09 PM   #4923
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Good morning, Maggie. I hope your eye MD visit gave you some good news. My latest analogy of you..... THE ENERGIZER BUNNY!

You are very correct in your opinion of hospital care. It all comes down to $$$$! as far as the hospital, the "interim doctors", who sometimes make a minimal appearance in one's hospital room....(I wonder, if intention to get their visit on the record, to get paid for setting one foot into the room....some did exactly that on my last hospitalization, and in my opinion, offered exactly nothing of value for my care)!

Even when there is a valid reason for proper care, the insurance has the bottom line of what care you may or may not receive. Patient centric care is a phenomenon these days, it appears. Hospitals import "nurses" from other countries, most of whom speak little if any understandable English.....all to save a few bucks! You are lucky if you do get a well educated American nurse who is truly dedicated to giving the best patient care possible. I had some of these kind of nurses as well, but, other ones show up on the next shift who I would not want to care for my dogs!

It most certainly behooves the patient and family to be their own advocate, educate themselves as much as possible, question if something does not seem right....don't be a sheep and follow blindly, assuming they know "what the h*#l they are doing! Case in point... The nurse who tried to convince me that my IV was not infiltrated, when it obviously was. She was about to shove a medication in, without double checking if IV was still intact, a rule any nurse should know, the med could have caused serious tissue damage in an infiltrated IV. I refused her attempts., and asked for an IV THERAPIST TO BE CALLED TO MY ROOM, STAT. The IV team nurse arrived, confirmed my assessment, removed the IV, and inserted a new IV, before administering the meds.

My last time in hospital was so stressful, trying to assure my care was accurate, refusing some obviously, terrible instructions, monitoring what medications the poorly educated nurses were giving me, correcting their mistakes, etc., that I was begging to be released home so that I and my daughter could provide adequate care for me.

In November, I contracted a serious form of bacterial pneumonia that rapidly affected all four lobes of my lungs. My MD, whom I have great confidence in, told me to go to ER, as the illness exacerbated to a critical level, on a Saturday. I bargained with him to supply the medicines I needed so that I could care for myself at home. We agreed that I would go to ER if I felt I was in a situation that I would want my daughter to go if it were her health at risk. On Monday, my daughter took me in to my MD, where he ordered an IV placement at their clinic and I was sent home with potent IV antibiotics + other meds, where my daughter and I provided the proper care till I was well.

True, everyone cannot do this for themselves, but, as a well trained RN, with all my abilities intact, and my daughter's care, who also has a medical background, I was able to heal without the stress of my prior experience.

My advice to all..... Speak up for yourself, ask questions, know what is going into your body and why. Keep with you, copies of your current medical care, and make sure it is actually read by those who may interact with you. Hospital professionals do make mistakes....some lead to worsened health care, even death. Not meaning to scare you....just be aware and prepared!
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Old 01-10-2018, 01:30 PM   #4924
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Goodness, Evelyn, that sounds like a really scary situation, and glad you were able to successfully take over your own care.

Maggie
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Old 01-10-2018, 02:25 PM   #4925
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One of the reasons I'm moving is to be near my daughter who works in a hospital. If I get sick, I want her nearby to monitor my care.
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Old 01-10-2018, 07:08 PM   #4926
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Good move, Mimi! Family and you are your own best advocates. Maggie, I am so glad for you that your son is close by. Knowing someone is looking out for you is especially important when your only choice is to go into hospital.

There was a time when patient care was the most important issue in a hospital. There have been such drastic changes in the hospital and medical systems, and greatly impacted by the control of the insurance industry. I have learned through experience, something that I was beginning to fear about 9 years ago. Such drastic changes, especially in the care and impact of the elderly population, seemed to demonstrate in the less aggressive treatment one receives as one ages.

It seems to be a loosely held "secret" that when one reaches an advanced age, perhaps it is not worth the money invested in an old person. I found that when I do go to hospital for tests, etc., I am questioned as to whether I want to be resuscitated and at that time, I assure them that my life has value, I have many years ahead, and that I lead an active life.
Upon hearing this response, I have been asked what do I do with my time, in my retirement years?

I load them up with my lifestyle activities, including use of my motor home, travel, outdoor activities...and that I do it all without help from anyone. Their response is always one of surprise, and I insist that they give me the proper care they would want for themselves. You would be surprised at the difference it makes. I also let them know I am a nurse and know what is going on, and that I require the best patient care possible.

There is a huge difference in the care a nurse or doctor receives, no matter how old.
I am not the least shy in telling a young nurse how to do the task, if they appear to be inexperienced or hesitant. It is my body, my health at stake, after all.
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Old 01-10-2018, 08:55 PM   #4927
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Oh my gosh, Maggie! I'm just now reading your recent posts. So sorry to hear about your incident. I hope that time will restore your proper sight and that you will soon be back to your normal self. Sending healing thoughts your way!
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Old 01-11-2018, 05:33 AM   #4928
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Thank you.

I was asked in the ER whether, should my condition deteriorate and I require intubation, etc., did I want this and other life saving measures performed.

I was more than a bit taken aback, just finally into a room and not even yet having had the first ct nor diagnosis of the “pontine bleed”...and being otherwise alert and in good health.

I responded that I am only 68, so of course want everything done possible unless I am determined brain dead, in which case my children will make decisions accordingly.

I have heard from friends in the medical field the same loosely-held secret in the health industry, driven by the insurance companies, that health services may not be “worth it” for the elderly.

I don’t consider myself “elderly”, for one, and find it disturbing that there could be out there such an overall attitude and approach to medical care for the aging.

I don’t recall any such qualifiers in my insurance documents, that less than optimal care may be provided beyond a certain age....this may actually be a passive practice and approach, hidden within the “acceptable level of error” standard.

That is pretty darned scary.

Maggie
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Old 01-11-2018, 06:02 AM   #4929
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Thanks, Bud.

While I without exception felt I had very skilled and knowledgeable caregivers, and received excellent care, there is now a very strong feeling of being not completely ďsafeĒ in this new kind of medical care...having to do with things that were missed when I was admitted, and something critical I was not advised of during my stay...an issue not part of my discharge instructions, nor relayed to my pcp for follow-up.

But for my pressing my pcp on a related issue on Monday, the problem would still be hidden in test results in my electronic file...my care now transferred out of the hospital and back to him.

No collective memory, continuity fragile, and many cooks in our healthcare kitchen.

Used to be, test results and interpretations came to your physician in hard copy, looked at by them before being filed. That is no longer the case, and the conga line practice of pseudo-pcpís passing thru your care whilst you are in the hospital is by its very nature ripe for error.

Iíve now allowed my medical social worker daughter access to my electronic health record, should there be a time when I canít look at it and speak to things myself...she in coordination with my son would be my medical advocates.

We are not naturally geared to look at test results and ask questions about our medical care, ourselves, I donít think...but we need to be.

Itís a whole new medical care world out there.

Maggie
If I remember correctly hospital and medical errors cause in excess of 1,000,000 deaths per year. It's only going to get worse is what I see as fewer people are entering the nursing and doctor fields.

Take Care, hug Lily- it always helps.
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Old 01-11-2018, 11:26 AM   #4930
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If I remember correctly hospital and medical errors cause in excess of 1,000,000 deaths per year. It's only going to get worse is what I see as fewer people are entering the nursing and doctor fields.

Take Care, hug Lily- it always helps.
It's certainly an issue, but a million deaths per year might be a little high side estimate. 🤔
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Old 01-11-2018, 01:31 PM   #4931
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I think itís around 100-150,000 per year last time I looked. Still too darn high. Wife is an RN, and she sees the deterioration in health care skills, defensive procedures, and other crazy stuff going on daily. Itís not like it used to be....

Itís not that itís super hard to get into the medical field, IMHO, the problem, especially in nursing, is that people are unwilling to work that hard, with that many stressors, for organizations that donít want to pay for the skills needed. Sore subject around my house...
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Old 01-11-2018, 01:57 PM   #4932
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I agree, rmkrum. Back in my day in nursing, there was a dedication and a satisfaction in making a difference, helping people, doing all one could to help them heal. The feeling of being a part of a team that prides themselves on saving lives was as important to me, as the salary, (which was always unimpressive....too little for the level of education and expertise that was demanded of each and every nurse).

These days, I think there may be a minimum of people who go into th field of nursing to make a difference in the lives of others. The "IT's ALL ABOUT ME GENERATION" ....perhaps way too many young folks who are unwilling to work the long, hard hours after obtaining an advanced level of education, for never close to the salary that they deserve, is having an impact on the nursing field.

Too many kids, feeling too entitled. The hospital philosophy of paying too little, expecting too much, not valuing the experience of the older nurses, who have earned the right for a more substantial salary, which hospitals do not want to pay, let alone the fact that few older nurses are retained long enough to collect a pension....all this factors in to a decline in the level of expertise in the field. Add to that, the insurance industry control....$$$$$! No wonder it is like it is today. Enter the government involvement in patient care....well, we all know how well they manage "anything"!
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Old 01-12-2018, 05:51 AM   #4933
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This article keeps popping up on my home page...

https://www.huffingtonpost.com/entry...b01e1a4b181060

I’ve cancelled my stay at Tybee Island and Edisto for this winter, but anticipate returning there next year...one, a beloved place of many years, and the other a new one just discovered in 2017.

Doug and I were so very fortunate, to have 6 1/2 retirement years of roaming and discovering the country together, and I the ability to do it by myself these past nearly 4 since his death.

Yes, I choose to be grateful, in spite of recent events, as it is better to look up than back.

I’ve had other disasters in my life...for which my track record of surviving is 100%, thank you very much... and a number of near-misses, where I’ve been pulled the right direction by an unseen hand, just in the nick of time.

I have fully recovered from the recent event, minus the inconvenience of double vision , having resumed all activities that can take place within my little house, or escorted out beyond my driveway.

Reading and typing with the left eye closed necessarily limits those activities, but I can live with that.

My eye doctor yesterday saw nothing unexpected going on, giving what occurred and where, and anticipates I will make a full recovery within the next 6 weeks.

Minus the blood thinners , this shouldn’t happen again, and it could have been so much worse.

I am grateful.

Maggie
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Old 01-12-2018, 07:33 AM   #4934
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I had the opposite experience with the health care system in caring for my Father in his final years. He was in a deteriorating condition with both cardiovascular and respiratory decline.Over a 4 year period he would periodically find himself admitted to the hospital after receiving care in the ER.
While admitted, the Hospitalist, Cardiologist, Etc would insist on tests etc to find the "cause" of his decline.After my questioning this, they would agree that there probably is no treatment available to him and on my insistence, release him rather than subject him to the exams and longer hospital stay.
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Old 01-12-2018, 08:10 AM   #4935
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Thatís very good to hear, on the one hand, but on the other may demonstrate an excess at the other extreme.

Thereís got to be a happy medium, and that may exist within our own efforts and those of our appointed advocates on our behalf.

Maggie
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Old 01-12-2018, 08:12 AM   #4936
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Colorado Lady; I couldn't said it any better. We worked days, nights week-ends holidays etc. some times we worked our shift with OT and went in on the next with little or no sleep all because not enough staff. This is where the "mistakes" happen. Also when it comes to staff, yes the "off shore" nurses are used and needed. They are also a "warm" body. There are the times when one is praised and another when criticized.
NSBCPA; I have seen both sides like you stated; where the family wants
everything done and also like you stated "make the patient comfortable. There is a form called"ADVANCED DIRECTIVE" this is where the patient consents or rejects as to life support procedures and if needed someone responsible for the decision.
On my last Dr. visit, I was asked if mine had been completed ( I'm 77) per NEW Medicare Guideline. hummm ?
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Old 01-12-2018, 02:36 PM   #4937
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Thank goodness I have been able to crochet thru this little episode.

This was todayís project, a cover for the Iowa grandís IPad...after she announced to me when I saw her after Christmas that sheíd had to throw her case/cover away, because it had gotten ďslimeĒ all over it.

If you have or know gradeschoolers, theyíre all into ďslimeĒ they make out of Elmerís Glue and who knows what else... kind of like the Silly Putty we played with as kids.

I hated looking at her carrying and storing a naked IPad.
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Old 01-13-2018, 05:18 PM   #4938
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Our internist whom we've had for over 30 years is part of a university system and told me on my last visit that he is warn out. Not by patients, nurses etc but by interns assigned to him for further training who know very little and constantly talk about time off and the long hours often rushing thru patients so they can leave.
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Old 01-13-2018, 08:43 PM   #4939
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Maggie, just ran across this development. Hoping you a speedy recovery. I highly recommend a book by Julia Fox Garrison, Don't Leave Me This Way. Best book on strokes ever

Dana
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Old 01-14-2018, 05:43 AM   #4940
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Thank you, Dana.

My left eye has almost returned to its assigned spot, mid-socket , tho I suspect the resolution of the double vision is on its own, and separate, timetable.

Reading about the type of stroke I had....I choke on that word each time, preferring small brain stem bleed...because googling it is what one does in the 21st century, they can be devastating.

I was lucky. I thought I had injured my eye, and had time to do a few things, as well as determine whether Prompt Care or the Emergency Room was the necessary destination.

I put Lily out before calling my son, knowing she would be by herself for awhile.

I also sat in the bathtub with the handheld and showered, then put on clean pjís and a robe, because I was too violently nauseous to completely dress.

Remember...a sudden vision change is considered a stroke until determined otherwise, and loss of balance or sudden nausea/vomiting can indicate someone is having a stroke.

I was very lucky.

Maggie
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