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Old 01-04-2018, 12:24 PM   #4901
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Quote:
Originally Posted by Protagonist View Post
Please don't get upset. I used to be an engineer, and my mind tends to take things literally whether I want it to or not.* So when I see an "if/then" statement, I natually assume that the "then" is predicated on the "if." In this case "If you can call" and "then put the dog in a room." I merely pointed out that being able to call doesn't always mean that you are able to put the dog in a room. It wasn't meant as a criticism.
*It appears that my mind has a mind of its own!
Not a problem.I Should not have used the exclamation point.
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Old 01-04-2018, 12:30 PM   #4902
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Maggie, so glad you are home. Be sure to watch closely for any symptoms that may present, that could be indicative of blood clot, i.e., DVT, PE, etc. especially since you are now off blood thinners. They probably went over all that upon discharge...a lot of info to take in when you are not feeling well.

Prayers continue till you are back to normal. Meantime, stay warm, cuddle with sweet Lily, as she needs it, as do you. God bless. Evelyn.
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Old 01-04-2018, 03:31 PM   #4903
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Glad you are home Maggie. Here is hoping for a quick recovery. We will be praying that it is so.
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Old 01-04-2018, 04:18 PM   #4904
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Mags

Thoughts and prayers....
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Old 01-05-2018, 05:47 AM   #4905
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Thanks for the prayers and well-wishes. I appreciate them.

Tired and going to bed early, eye exercises several times, crocheting mostly by feel...thatís my day.

Going to put the patch on my left eye this morning and run the vacuum cleaner...the right eye will behave if the left is covered.

I see an opthalmologist next week, and will be interested in what he sees and has to say.

All is well.

Maggie
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Old 01-07-2018, 05:54 AM   #4906
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This is a public service announcement:

You can have a stroke without your face, arms or speech being affected.

A sudden vision change is considered a stroke until determined otherwise.

Important to act fast...call 911.


I put on my pirate patch yesterday morning, ran the vacuum cleaner and did a couple of loads of laundry...the patch blocks all light from the left eye, allowing the right eye to focus and behave properly. A good thing.

My ability to move my left eye is improving, but it still rests pointing inward...tho, as one of the nurses told me, it could be rolled completely up in the socket ...tho vision has not improved, nor the aura when this eye is uncovered.

Iím getting better at winking the left eye closed, which eliminates the vision issues long enough to read my e-newspapers, Forums, email, etc.

Much easier to read and type with one eye than two unfocused.

Sweet son transported me to and from a family gig yesterday, with a stop at the grocery store on the way home...me sporting my large and somewhat glamorous sunglasses purchased for the trip to Greece, lest the misbehavior of my eyes frighten small children as I carefully navigated the produce department.

I see via Uber my pcp in the morning, and opthalmologist on Thursday....otherwise am housebound, but that is okay.

Cold as a well-diggers ass here, as Doug would say, but we are warm and snug and doing fine.

Just checking in.

Maggie
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Old 01-07-2018, 11:52 AM   #4907
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Maggie,
you always manage to find a way through...no matter what the obstacle. Good for you. My motto....NEVER GIVE IN, NEVER GIVE UP! Yours also! Good luck at MD.
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Old 01-07-2018, 04:14 PM   #4908
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More people than you know are wishing you a speedy recovery.
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Old 01-07-2018, 04:25 PM   #4909
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Awwww, thank you.

I did a little cooking today, and spent a lot of time on the phone with friends checking in.

My friend in Minnesota, in the medical field, didn’t find it at all unusual that this bleed occurred while I was bobbing and jerking my head around, trying to flush soap out of my eye.

It is apparently common knowledge that women have been known to have strokes when they lay their heads back at the shampoo sink at their hairdressers.

It has warmed up a bit here, and indoor temps have been over 70 degrees for the first time in more than a week.

Maggie
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Old 01-09-2018, 10:10 AM   #4910
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This is a public service announcement:

In addition to keeping a list of current medications in your wallet at all times, make sure that your trusted someone...spouse, child, other relative, etc....knows where that is located and/or has a copy so that it can be quickly handed over to medical providers in the event you are not able to do so. (I keep mine behind my drivers license, in my wallet)

If you are admitted to the hospital, you or your medical advocate needs to review your ongoing medications with your caregivers, to insure critical medications are continued or there is an informed decision as to stopping them.

It seems to be a more than occasional event, that medications taken prior to hospitalization are allowed to lapse as one is admitted under a hospitalist or specialist, someone other than your pcp...if there are specialists as well as hospitalists or intensivists, a “who’s on first” question may exist between them, where no one takes responsibility for assessing prior medications relative to the current emergency.

Not only can one have extreme bodily reactions to the abrupt cessation of certain medications, but those needed to treat ongoing critical conditions may not be administered without direct questioning and individual advocacy.

If you have ongoing medical issues, maintain a current list of those, with the names of any specialists, also giving a copy to your trusted someone to hand over if you are unable to do so.

Give your trusted someone electronic access to your health system’s medical records, so that if you are unable they can look at test results, upcoming appointments, whatever...asking questions and insuring identified issues are followed up on.

In this age of intensivists, hospitalists, etc., your primary care physician you may have had for years is likely not the physician who will follow you into the hospital and be responsible for your care in an emergency. And, when you leave one unit, such as ICU, and are moved to another, you may leave your first pseudo-pcp and be handed off to another.

There is serious risk for fragmented care, here...continuity may be lacking, even with skilled staff and the best of intentions, and there is no collective memory even within the same health system accessing a common set of records.

Things can and do get missed, discharge instructions may not be inclusive of all issues and needs for follow-up.

If you are able, you need to get into your patient account, review test results and ask questions. If you are not, your special person needs to become your medical advocate, and do this for you.

Hospitals, clinics, medical systems of all sorts appear to be run more as a business than the patient centered providers we grew up with...I remember our family physician making afternoon house calls, when I was growing up. He also performed our surgeries and set our broken bones, etc.

Whether we were ill, hospitalized, had had a tonsillectomy or other surgery, it was one physician responsible for providing your primary care and coordinating that with any specialists you might rarely need.

Be watchful, be your own best advocate, have surrogates, ask questions and don’t assume your health care providers are the nearly infallible safety net they once were.

It’s a whole new world of medical care out there, likely designed to most efficiently allocate medical resources as we baby boomers grow old and overwhelm the health care system.

There...I said it.

Be well, and take care.


Maggie
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Old 01-09-2018, 10:38 AM   #4911
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Maggie so we'll said.

While we do not have personal experience with this as our own Healthcare is concerned, we certainly have lots of experience with this in the assistance of caring for my 93 year old in-laws.

My father in law has frequent falls, bleeding and hospitalizations. His blood thinners, Warfarin, in his case is a very integral part if his day. Too little and he has TIA's (strokes). To much and his nose bleeds and other minor scrapes cannot be stopped.

When he was being treated for bladder cancer he would frequently be taken off of his Warfarin during the treatment. It wasn't until several treatments and strokes into this process that we learned that there was an alternate form of the warfarin that could be taken in a different dose. Once we learned this he was able to go forward with the bladder cancer treatment and remain on his Warfarin which were both vitally important.

As much as the federal involvement in medical care has made it seem like our medical records will be all inclusive at the touch of a finger or the entry of a social security number that just is not the case.
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Old 01-09-2018, 10:43 AM   #4912
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Great advise, Maggie!
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Old 01-09-2018, 10:46 AM   #4913
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Quote:
Originally Posted by Protagonist View Post
Please don't get upset. I used to be an engineer, and my mind tends to take things literally whether I want it to or not.* So when I see an "if/then" statement, I natually assume that the "then" is predicated on the "if." In this case "If you can call" and "then put the dog in a room." I merely pointed out that being able to call doesn't always mean that you are able to put the dog in a room. It wasn't meant as a criticism.
*It appears that my mind has a mind of its own!
Hi Maggie,

I too am sending you lots of well wishes for a speedy recovery. You will be on the road again!

Protagonist, my wife is the same way in how her brain/mind operates. I call her "Literal Woman" ! And I'm a joker so you can imagine the funny dynamics/conversations that occur. It's taken us years to understand how differently we think and process information! Very challenging for her to navigate people like me .

Hope it was okay to write this here on your thread, Maggie. I'm hoping it's entertaining or at least interesting to you!

Chris
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Old 01-09-2018, 11:11 AM   #4914
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Thanks, folks.

Most anything is okay here, and if not, someone will certainly tell you.

The fragmentation in health care is frightening, and most everyone you talk to has a story of their own, a loved one, or someone they know.

I’m hearing at it’s center is the insurance companies, and medical care often being run as a business with “an acceptable level of error”.

We need to watch out for our friends and loved ones, is what it comes down to.

60 Minutes, or some such entity, perhaps needs to set their teeth into this issue.

Maggie
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